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Agenda and minutes
Crossroads Hospice speaker and volunteer coordinator joined the meeting. Sophomore and juniors were present. No seniors or freshmen. Welcome new member, Josh W.
1. F-5 Fest Approved: What is F-5? What is F-5 Fest @ Casady? Why F-5 Fest?
INTERNET RESEARCH
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F-5: A fighter plane, http://en.wikipedia.org/wiki/Northrop_F-5, 
http://www.tornadoproject.com/fscale/fscale.htm,
F-5 Festival: http://f5fest.com/2011/ A new festival exploring the intersection of art, design and entertainment. Organized by passionate people who truly understand the value of community and creativity, F5 Festival seeks to be a meeting place for the brightest minds in the world. Founded on the belief that true insight and lasting inspiration come from unexpected places. F5 fosters creative collisions,: those moments of lasting insight and inspiration that occur when we discover something unexpected. The two-day festival gathers creative directors, motion designers, filmmakers, digital artists, photographers, producers, interactive designers, graphic artists, agency executives, visual effects experts, musicians and industry visionaries—to name only a few. F5 is more than just the pulse of creativity; it is its heart.
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Casady F-5 Fest Background: Jessica G., YAC sophomore chair, wanted to promote service in the culture of our school and more intentional service collaborations across the lake with a project similar to BALTO or SWINE week. During those weeks, at public schools, students have a series of fundraising activities for a chosen cause.
Jessica showed the BALTO Week video and opened the floor for ideas. Connections to STUCO, Gales, Art Club (t-shirt) contest were brought up. What about if every club embraced a day? Jessica stated that this year, we might not have a full week, but whatever we do, should be done WELL to insure sustainability of the events in the culture of the school. Mrs. Clay stated to be watchful with the quality of the events, being discouraging of anything that will waste food for entertainment when we have 700,000 Oklahomans under the poverty level, many experiencing hunger. She also stated concern with using people for a quick laugh to earn dollars. She hopes the organizers will make sure always focus on respecting human dignity and the fact that there are so many younger students watching to UD students as their role models.
It was very exciting to hear the enthusiasm for the idea. The Crossroads Hospice guests stated, "The kids made us realized how little we did while we were in high school... They made us wish we could go back and take advantage of what was being offered, be more involved."
It was very exciting to hear the enthusiasm for the idea. The Crossroads Hospice guests stated, "The kids made us realized how little we did while we were in high school... They made us wish we could go back and take advantage of what was being offered, be more involved."
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SWINE AND BALTO WEEKS
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Our hearts are breaking after learning the diagnosis for Bennett last week so this post has been most difficult to compose. The news is not good as the test results from Baylor indicate he is fighting an EXTREMELY RARE disease called Pearson(‘s) Syndrome. There appear to be less than 100 diagnosed cases worldwide! We are trying to wrap our minds around it and it’s extremely overwhelming.
This is OUR explanation compiling some of the information his team of doctors provided for us. Pearson Syndrome is a rare multisystem disorder caused by mitochondrial deletions/mutations in cells throughout the body. (Mitochondria are small units responsible for energy production in the cells.) Mitochondrial disease causes cells to not be able to carry out their function and result in various symptoms. At present, for Bennett, it has been bone marrow failure and pancreatic malfunction.
Most cases of Pearson Syndrome appear to be random occurrences instead of an inherited condition and Bennett’s is just that. Unfortunately there is no specific treatment for Pearson Syndrome other than to support the symptoms, which is what we have been doing and will continue to do. He will be dependent on red blood transfusions (which have been about every two weeks) to treat his anemia, We continue his daily dose of neupogen to stimulate white cell production. He’ll probably need more platelets at some point. He’ll continue taking his vitamins (A,D, E and K liquid). We’ve added enzymes to his daily routine in hopes that it will help him absorb more nutrients when he eats.
In Pearson Syndrome, disease problems tend to show up first in blood and the pancreas (like it has for Bennett), but the bad cells can already be in other organs and tissues in the body waiting for other difficulties to occur. His test results indicate only 20% of the cells in his body are normal leaving 80% that are compromised. So, it’s a “wait and see” situation to know what might happen next.
As you might imagine there are and will continue to be enormous expenses involved in Bennett's ongoing care.
The Hanneman's are a wonderful family that will truly be grateful for your help and support. Let me know if I can be of further assistance. Carol Williams
Jessica needs as many teen helpers as possible because we have to have a ratio of 2 children per teen to insure safety and individualized attention of the kids under our care from 5:30-11:00 PM for a fee of $30 per child. Jessica passed her prepared volunteers signed up sheet.
Jessica gave credit of the creative F-5 name to Jessika R. Mrs. Clay stated that her first reaction to F-5 was negative because of its connection to destruction, but after the above quick internet research, she sees it as massive inter-divisional positive effort to help a cause and develop relationships and positive leadership. It is short, sweet, to the point and with many creative possibilities.
As Jessica started her research for an organization to receive the funding from events with emphasis on relationship building, she first considered OATH http://www.oathcoalition.com/
Written Dec 28, 2012 10:07am: Carmen. Below is some information about Bennett. I hope this is what you need. Bennett Hanneman is 11 months old. He is the son of Aimee and Ben Hanneman. Mrs. Hanneman is the reading / learning specialist in the lower division here at Casady. Adeline, Bennett's sister, is a pre-kindergarten student at Casady. I have copied some information I received from Aimee after they received a diagnosis on Bennett.
Our hearts are breaking after learning the diagnosis for Bennett last week so this post has been most difficult to compose. The news is not good as the test results from Baylor indicate he is fighting an EXTREMELY RARE disease called Pearson(‘s) Syndrome. There appear to be less than 100 diagnosed cases worldwide! We are trying to wrap our minds around it and it’s extremely overwhelming.
This is OUR explanation compiling some of the information his team of doctors provided for us. Pearson Syndrome is a rare multisystem disorder caused by mitochondrial deletions/mutations in cells throughout the body. (Mitochondria are small units responsible for energy production in the cells.) Mitochondrial disease causes cells to not be able to carry out their function and result in various symptoms. At present, for Bennett, it has been bone marrow failure and pancreatic malfunction.
Most cases of Pearson Syndrome appear to be random occurrences instead of an inherited condition and Bennett’s is just that. Unfortunately there is no specific treatment for Pearson Syndrome other than to support the symptoms, which is what we have been doing and will continue to do. He will be dependent on red blood transfusions (which have been about every two weeks) to treat his anemia, We continue his daily dose of neupogen to stimulate white cell production. He’ll probably need more platelets at some point. He’ll continue taking his vitamins (A,D, E and K liquid). We’ve added enzymes to his daily routine in hopes that it will help him absorb more nutrients when he eats.
In Pearson Syndrome, disease problems tend to show up first in blood and the pancreas (like it has for Bennett), but the bad cells can already be in other organs and tissues in the body waiting for other difficulties to occur. His test results indicate only 20% of the cells in his body are normal leaving 80% that are compromised. So, it’s a “wait and see” situation to know what might happen next.
As you might imagine there are and will continue to be enormous expenses involved in Bennett's ongoing care.
The Hanneman's are a wonderful family that will truly be grateful for your help and support. Let me know if I can be of further assistance. Carol Williams
The F-5 Fest received approval to fundraise from Mr. Philipson three days ago with restrictions given by our business manager, "We're a go on having the babysitting event, but we run into a roadblock in making a fundraiser directly for the Hannemans--essentially, regardless of the tragic circumstances, if we're giving the money to a private individual, we're running a business and compensating somebody, and that has a number of implications regarding taxes, school policy, etc. "
Bennett's family is going to designate the organization for F-5 Fest proceeds, but Mrs. France, MD Director told Mrs. Clay on 2/22/2013 that the Bob Stoops Champions Foundation http://www.oufoundation.org/
For details and to share ideas about Casady F-5 Fest 2013, contact F-5 Fest Chair @ jag427@cox.net. UPDATE ON F-5 FEST 2013: During lunch Jessica talked to Mrs. Seitter who said the Art Club would love to help. Jessica also talked to Sidney G. Sidney said she would love to draw something kinda like an emblem. Jessica will give her the color scheme and other emblems from other schools.
Jessica reported that the first possible event could be: babysitting fundraising on campus during the March 1, CPO Auction. Jessica worked hard during the snow day making permissions, flyers and registration form to be ready. The event was approved with reservations three days ago. A meeting with Mr. Sheldon, Division Heads, and Dean of Students about Jessica's Registration Form disclaimer is pending as well as responses from teachers who were asked to help supervise the event, a minimum of two required, besides Mrs. Clay.
Mrs. Clay asked YAC for a round of applause for Jessica's effort and demonstration of thoughtful leadership.
Jessica needs as many teen helpers as possible because we have to have a ratio of 2 children per teen to insure safety and individualized attention of the kids under our care from 5:30-11:00 PM for a fee of $30 per child. Jessica passed her prepared volunteers signed up sheet.
Mrs. Clay sent e-mails to key teachers in LD, PD, and UD to help Jessica supervise children and teens, and create age-appropriate activities, although Jessica already had a process at brainstorming stage. Mrs. Clay will be supervising the whole event, but a minimum of two other teachers and possibly a nurse are required.
UPDATE:
Mrs. Clay request for help from teachers and nurse was not successful. The babysitting event on campus was cancelled due to concern for the safety of the participants and liability issues. Mrs. France, LD Director, suggested for the group of teens who signed-up to consider volunteering individually at the homes of interested parents attending auction and provide their individual proceeds or a percentage to F-5 Fest.
UPDATE:
Mrs. Clay request for help from teachers and nurse was not successful. The babysitting event on campus was cancelled due to concern for the safety of the participants and liability issues. Mrs. France, LD Director, suggested for the group of teens who signed-up to consider volunteering individually at the homes of interested parents attending auction and provide their individual proceeds or a percentage to F-5 Fest.
2. Volunteer opportunity: -Apple Tree: Volunteers needed for Saturday. Help elderly and cast to connect. Get service hours and free ticket to production. Mrs. Clay requested volunteers because she is unable to attend the Saturday performance, 27 elderly expected to attend. The YAC collaboration with the Drama Department will allow performers and back stage crew to receive service-learning credit.
Jessie R. will chair this service opportunity. After school, she recruited, Maia K. to help her welcome and usher our elderly guests from the Statesmen Club at the Vineyard to Fee Theater. Jessie and Maia received thank you tickets to the performance for their gracious service.
Jessie delivered 27 tickets to the Vineyard's Activities Director and introduced herself to some of our elderly guests who were enjoying a 50's gathering at the Vineyard. Jessie stated to the guests that she welcomes to opportunity to help make their Apple Tree experience enjoyable and be there to share during the intermission and at the end of the performance.
On Wednesday, at 11:30, members of the cast were ask to consider performing a couple of songs from The Apple Tree at the Vineyard. This is possible because Wednesday is UD Parent-Teacher Conference Day.
ITEMS TABLED until next meeting
-Great new Youth Boards available at http://casadyplacestoserve.blogspot.com/.
-National service learning conferences in March (Colorado), May (Boston) and June (Washington D.C.). Check details at http://casadyplacestoserve.blogspot.com/
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